Liam’s parents recently received devastating news from his latest scans. Their hearts sank as they learned the full extent of the disease: it had spread far more aggressively than they had feared, enveloping the outer layer of his brain and extending throughout his entire spinal column. The reality hit them with an unimaginable weight—there were no more treatment options that could be pursued safely. Radiation could no longer be used because the affected area was simply too large, and chemotherapy had proven ineffective. Moreover, continuing aggressive treatment would further compromise Liam’s quality of life, especially given his underlying kidney disease.
In the face of this heartbreak, Liam’s parents made an agonizing decision. The focus would shift from fighting the cancer to ensuring that Liam could live the remaining time he had with comfort, dignity, and love. The plan was to gradually wean him from sedation until he could be extubated, after which he would be taken home on hospice care. This approach would allow him to play, laugh, and make as many memories as possible with his family, savoring moments of joy and love in the time that remained. His parents knew the road ahead would be extremely challenging: the cancer’s presence in his central nervous system meant that Liam would likely lose mobility and experience more seizures. Still, they held onto hope that he could simply be himself—Liam—as much as possible.

The journey through the hospital has been both harrowing and heartwarming. At times, Liam has struggled intensely, presenting with agitation and confusion that made it difficult to distinguish between delirium from sedation, pain, or the effects of the cancer itself. His parents describe him pinching, kicking, and attempting to remove his medical cords, behaviors that were completely unlike the gentle, loving boy they knew. Keeping him safe required careful “love holds” to prevent injury, and every moment was emotionally exhausting. Liam’s pain was evident, and witnessing their son in distress was utterly heartbreaking.
Yet even amid the struggles, there have been glimpses of their sweet, loving boy. As Liam gradually emerged from sedation, moments of connection and warmth returned. Though still sometimes aggressive or agitated, he has started to express himself in familiar ways—saying “I love you” to his parents and asking for “Liam’s bed.” These small, precious gestures became beacons of hope and joy for his family. The medical team worked tirelessly to find the right combination of pain medications to keep Liam comfortable while gradually reducing his IV medications so that he could be cared for at home.

Liam’s parents treasure these fleeting moments of normalcy and love. Each shared smile, each whispered word of affection, each small sign of recognition is a victory in its own right. Even in the midst of suffering, Liam’s courage shines through. His bravery inspires not only his family but everyone who hears his story. Through the tears, exhaustion, and heartbreak, there is a thread of hope—a hope that Liam can spend time surrounded by love, laughter, and the simple joys of being a child, even in the face of unimaginable illness.
Liam’s story is a testament to resilience, love, and the human spirit. His parents ask for the support of the community, for prayers, comforting thoughts, and positive energy to wrap their family in strength and grace. They are not alone in this journey. As Liam fights with unmatched courage, he reminds everyone of the power of love, the importance of family, and the extraordinary bravery of a little boy facing challenges no child should ever endure. Liam, though small in size, is a giant in courage, and his story continues to inspire, reminding us all of the profound strength found in love and hope.
Simba Went Out a Lion… and Came Back a Walking Bush.684







